Building Systems of Services for Children and Youth with Special Health Care Needs Year 3 Resource Snapshot

The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), Early Hearing Detection and Intervention (EHDI), and Healthy Tomorrows Partnership for Children Programs (HTPCP) are supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of a coope​rative agreement between the Maternal and Child Health Bureau (MCHB) and the American Academy of Pediatrics (AAP). The following are resources that were developed as part of this cooperative agreement.

National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH)​

• Health Equity Literature Review Table
  Developed by the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), the health equity literature review table outlines recent publications pertaining to children and youth with special health care needs (CYSHCN) and children with disabilities (CWD) through the lens of equity and medical home. The table provides a snapshot of peer-reviewed research and other articles, highlighting the critical need for CYSHCN, CWD and their families who experience barriers and with less resources to receive care through the family-centered medical home model. 
• ​​Health Equity Logic Model​
  With support and partnership from the Maternal and Child Health Bureau, the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) developed a health equity logic model, outlining key activities, stakeholders and anticipated outcomes to support the increase of African American and Black children and youth with special health care needs and their families receiving care through a family-centered, equitable, and culturally competent medical home. 
• ​​​Social Determinants of Health Information Flyer for Families​ 
  Developed by the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), the social determinants of health (SDoH) flyer​targets families of children and youth with special health care needs (CYSHCN) and children with disabilities (CWD) to increase their awareness of their pediatricians’ role in supporting their non-medical needs, such as food insecurity, housing, transportation, and mental health. The flyer is available in 8 ½ x 11 and 11 x 14 ​and can be posted in pediatric clinics and practices. ​

​Early Hearing Detection and Intervention (EHDI)

• Frequently Asked Question (FAQ) Guide for Pediatricians
  Developed by the American Academy of Pediatrics (AAP) Early Hearing Detection and Intervention (EHDI) program, the EHDI Frequently Asked Question (FAQ) Guide is an introductory resource for pediatricians serving families with a child or children who is or are deaf or hard of hearing (D/HH). This resource provides linkages and connections to important resources in states, critical components of working with families, and tips and strategies for billing and coding.
• Promising Practices
  The American Academy of Pediatrics (AAP) Early Hearing Detection and Intervention (EHDI) program has developed summaries of innovative and promising practices to guide opportunities for change in EHDI systems of care. The summaries included in the series of innovative and promising practices were prepared by EHDI leaders and stakeholders and reviewed by a panel of experts in the field.
• ​​Innovative and promising practices and strategies from the following programs can be found here: ​
• Ohio-Nationwide Children's Hospital​
• Virginia- Center for Family Involvement ​​​

​​Healthy Tomorrows Partnership for Children Program (HTPCP)

• Infographic
  The Healthy Tomorrows Partnership for Children Program  (HTPCP) developed an illustrative guide highlighting investments in the program since 1989, and demonstrate the impact, reach, and sustainability of projects after federal funding ends.
• Partnership Data Placemat
  The Healthy Tomorrows Partnership for Children Program (HTPCP) released a data placemat about community partnerships. Partnership and collaboration are crucial to implementing a successful Healthy Tomorrows project. 71% of the grantees reported that strong community partnerships contributed to the sustainment of their projects. Use this data placemat as a conversation starting point to understand successful community partnerships.  
• Healthy Tomorrows Partnership for Children Program Recommendations to Advance Health Equity
  Achieving health equity for its program participants is a key component of the Healthy Tomorrows Partnership for Children Program (HTPCP). With the goal of strengthening the technical assistance (TA) provided to grantees, the Healthy Tomorrows Resource Center, in partnership with Kathleen Gregory Consulting, LLC have developed recommendations​ to guide grantees in increasing the focus of health equity in their work.​​

Presentations at the 2020 Association for Maternal and Child Health Programs (AMCHP) Annual Conference

• ​​​The Association of Maternal and Child Health Professionals (AMCHP) national conference was rescheduled to be a virtual conference in August 2020 due to the COVID-19 epidemic. The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) and the Healthy Tomorrows Partnership for Children Program (HTPCP) programs still had a significant presence at the conference and presented on the following topics:
• Healthy Tomorrows Partnership for Children Program-Sustainability Success
  This poster highlights sustainability strategies from two Healthy Tomorrows Partnership for Children Program (HTPCP) projects, Community Asthma Initiative and Reach Out and Read.
•  ​​A Systemic Approach to Implementing Social Determinants of Health Screening
  This poster features results from the Action Learning Collaborative (ALC), innovative strategies to address barriers of state-level social determinants of health (SDoH) screening activities for children and youth with special health care needs (CYSHCN) and their families, and collaboration strategies for Title V and Medicaid. ​
• ​​A Model for Peer Learning, Workforce Development, and Support During the COVID-19 Pandemic: The CYSHCN Café
  This poster introduces the National Network for Advancing Systems of Services for Children and Youth with Special Health Care Needs response to the public health emergency created by the COVID-19 pandemic by developing an innovative space called “The CYSHCN Café." ​

COMING SOON: National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) Resources

• Medical Home and Equity for Children and Youth with Special Health Care Needs (CYSHCN) in Title V/CYSHCN Programs
  Developed by the National Resource Cen​ter for Patient/Family-Centered Medical Home (NRC-PFCMH), this overview summarizes strategies and initiatives that state Maternal and Child Health (MCH) programs have documented within their 2021 Application/2019 Annual Report and 2020 Needs Assessment. The information captured in this resource highlights overarching health equity efforts of the 39 states that selected National Performance Measure (NPM) 11 (medical home) as it relates to children and youth with special health care needs (CYSHCN) and their families. Additionally, data from the 2018-2019 National Survey for Children's Health (NSCH) are highlighted.
• HealthyChildren.org article​
  The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) has partnered with Dr Joan Jeung, Executive Committee member of the American Academy of Pediatrics' (AAP) Section on Minority Health Equity and Inclusion (MHEI) and NRC-PFCMH Advisory Committee member, to write an article addressing social determinants of health (SDoH) screening for families with children and youth with special health care needs (CYSHCN). Th​is article highlights the role of the pediatrician in supporting families with non-medical concerns, such as meeting basic needs, dealing with stress and emotional concerns, in addition to highlighting support services available for families.​​