• New Release! Pediatric Care Coordination Curriculum: Second Edition
  The National Resource Center for Patient/Family-Centered Medical Home (NRC PFCMH) and the National Center for Care Coordination Technical Assistance launched the Pediatric Care Coordination Curriculum, 2nd Edition. Grounded in American Academy of Pediatrics policy, the curriculum is designed to build capacity among diverse stakeholders and provide tools to measure care coordination activities and support continuous quality improvement efforts. The curriculum can be used for all populations of children, including those with special health care needs. For more information visit the NRC-PFCMH Website.
• New Podcast! Multidisciplinary Care Coordination Training for Children with Medical Complexity: The Arizona Experience
  Developed by the National Center for Care Coordination Technical Assistance and the National Resource Center for Patient/Family-Centered Medical Home, this pre-recorded, audio only podcast includes a conversation with leaders from Arizona regarding multidisciplinary care coordination training for children with medical complexity. Faculty during the session discuss practical, replicable strategies for implementing care coordination training. This podcast can support pediatricians, state Maternal and Child Health Title V programs, families, and other stakeholders interested in enhancing the medical home model of care. 
• New Promising Practice! Multidisciplinary Care Coordination Training for Children with Medical Complexity: The Arizona Experience
  Developed as part of the National Resource Center for Patient/Family-Centered Medical Home Promising Practices in Pediatric Medical Home Initiative, this profile describes how a pediatric medical center, a state Maternal and Child Health (MCH) Title V / Children and Youth with Special Health Care Needs (CYSHCN) program, and family leader collaborated to implement care coordination for children with medical complexity and their families. State MCH Title V / CYSHCN programs, pediatricians, families, and other pediatric stakeholders can learn practical, replicable strategies to collaborate with, and strength partnerships around, care coordination implementation.
  

Additional Implementation Resources

• New Release! The Impact of Racism on Child and Adolescent Health Policy Statement
  Published in Pediatrics, the Impact of Racism on Child and Adolescent Health is the American Academy of Pediatrics (AAP) first formal policy devoted to the issue of racism. The policy statement builds on existing AAP policies that address other social determinants of health such as poverty, housing insecurity, immigration status, and early childhood adversity. By acknowledging the role of racism in child and adolescent health, pediatricians and other pediatric health professionals will be able to optimize clinical care, workforce development, professional education, systems engagement, and research. This policy encourages pediatricians and others to address the role of racism in child health to reduce the health effects of structural, personally mediated, and internalized racism to improve the health and well-being of all children, youth, and their families. This policy statement can support pediatricians, state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, and families in improving health outcomes for children and youth.
• New Release! Bright Futures/AAP Recommendations for Pediatric Preventive Health Care 2019 Periodicity Schedule
  The Bright Futures/American Academy of Pediatrics (AAP) Periodicity Schedule was updated spring 2019 and can be found on the Engaging Patients and Families webpage on the AAP website. The website also includes information about updates to the periodicity schedule as well as free to download versions of the schedule. The Bright Futures Guidelines and Periodicity Schedule are the preventative component of the pediatric medical home model and can support pediatricians, families, non-physician clinicians, and state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs in caring for all children and youth, including those with special health care needs.
• New Release! Coding for Pediatric Preventive Care, 2019
  The Bright Futures/American Academy of Pediatrics (AAP) Coding for Pediatric Preventive Care booklet was updated in spring 2019. This resource provides a comprehensive listing of codes most commonly reported by pediatricians in providing preventive care services. The coding booklet is aligned with the Bright Futures Guidelines, 4th Edition. 
• General Health and Life Satisfaction in Children with Chronic Illness
  A new study published in Pediatrics examines health and life satisfaction in the context of chronic illness in children. Using parent responses to questions that assess a child's overall physical, mental, and social health, study results found that children with chronic illness have similar life satisfaction as compared to peers without chronic illness. The authors conclude that study results provide evidence that chronic illness does not preclude children from leading happy and satisfying lives.
• Out-of-Home Placement for Children and Adolescents with Disabilities
  The clinical report and addendum, Out-of-Home Placement for Children and Adolescents with Disabilities were recently reaffirmed by the American Academy of Pediatrics. The report and addendum state that children and youth with significant intellectual and developmental disabilities, as well as complex medical conditions, should be cared for by their families in their home environments. However, when this type of arrangement is not possible, the report provides suggestions for exploration of appropriate alternative care settings. This clinical report and addendum can support pediatricians, families, and others who care for children and youth with special health care needs.

​Training, Events, and Conferences

• National Academy for State Health Policy's Annual State Health Policy Conference
  August 21 – 23, 2019
  Chicago, IL
  Register Here
  The National Academy for State Health Policy presents is 32nd Annual State Health Policy Conference. This conference is for state health policymakers, pediatricians, and others involved in state health policy development. The conference sessions offer participants an opportunity to discuss best practices, lessons learned, and innovative solutions. Topics related to children and youth with special health care needs and systems of care are included.
• Introduction to the Standards of Quality for Family Strengthening & Support
  August 14, 2019 at 11:30am – 12:30pm Central
  Register Here
  Based on the Principles of Family Support Practice and the Strengthening Families Framework, these nationally adopted Standards of Quality for Family Strengthening & Support have created a common language across different kinds of family strengthening and family support programs such as Family Resource Centers, home visiting programs, and child development programs. These standards of quality are used as a tool for planning, providing, and assessing family support practices by state departments of public health, hospital systems, and families. This webinar will discuss the standards of quality and will provide participants with information on how to use the standards to develop, assess, and sustain family partnership in departments of public health and various clinical settings.

• Making Bright Futures Work! How Evidence, the Periodicity Schedule, and Bright Futures Guidelines Impact Practice
  This recorded webinar developed by the Bright Futures National Center discusses the new clinical content in the Bright Futures Guidelines, 4th Edition and the associated Periodicity Schedule. Faculty discuss how to use this evidence to decide on content for your practice's health supervision visits and how to identify strategies, tools, and resources to maximize efficiency for health promotion and preventive services, which are important for all children and youth, including those with special health care needs.
• Cameron's Arc: Creating a Full Life
  Now available through the American Academy of Pediatrics Pediatric Care Online platform, this collection of 5 videos portray how a primary care pediatrician partnered with a family of a child diagnosed with serious illness. The videos demonstrate family-centered care skills that can build capacity among primary care pediatricians to successfully care for a child and family. The videos are accompanied by a teaching and resource guide which include additional resources, discussion questions, and other materials.

• How Ten Hospitals Redefined Care for Medically Complex Children
  This recorded webinar series was developed by the Children's Hospital Association. In this 4-part webinar series, 10 participating hospitals will share their stories of success during the CARE Award, a national project to transform care delivery and reduce the cost of care for children with medical complexity. Participants will learn how teams enhanced the medical home model of care by improving care coordination, enhancing care delivery, and prioritizing family partnerships. This webinar series can support pediatricians, state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, families and others in improving the medical home model of care for children with medical complexity.

​Partners and National Initiatives

• New Resource! Learn the Signs. Act Early. AMCHP's State Systems Grant: Eight Years in Review
  The Association of Maternal and Child Health Programs (AMCHP) has developed a new interactive resource, Learn the Signs. Act Early. AMCHP's State systems Grant: Eight Years in Review. This resource provides strategies for improving state capacity and community systems to support early identification and care coordination for children with special health care needs as part of the Learn the Signs. Act Early. state systems grant. The resource can be used to support state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, pediatricians, families, and other stakeholders with practical and replicable strategies to build systems of care for children with special health care needs.
• New Resource! Zika and Long-term Implications for Systems of Care
  The Association of Maternal and Child Health Programs and the March of Dimes with support from the Centers for Disease Control and Prevention have developed 3 new resources based on lessons learned from Zika response efforts. These resources discuss experiences of states in their responses to Zika, discuss implications for the long-term needs and services for families and systems of care, and discuss opportunities to address gaps in the system. All 3 resources support state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, pediatricians, families, and other stakeholders in building systems of care of children, youth, and families. The resources include the following:
• Beyond Zika: Preparing MCH Programs for Future Threats to the Health of Families and Communities (issue brief)
• Preparing for the Future: Zika and Long-Term Implications for Systems of Care (summary document)
• The Value of Title V in Emergency Preparedness and Response (fact sheet)
• National Network Aims to Improve Health of Children and Youth with Special Health Care Needs
  A new research network for children and youth with special health care needs (CYSHCN) will lead, promote, and coordinate national research activities to improve systems of care for CYSHCN and their families. The network is funded through the US Department of Health and Human Services Health Resources and Services Administration and consists of 11 network sites. The American Academy of Pediatrics is represented on the steering committee for this network. For more information, visit the network's Website and read a recently published press release.
• The Practical Playbook II: Building Multisector Partnerships that Work
  Developed as a partnership between the Centers for Disease Control and Prevention, the de Beaumont Foundation, and Duke University School of Medicine Department of Community and Family Medicine, the Practical Playbook has published a new book featuring tools, methods, and models to support multisector partnerships to improve population health. The Practical Playbook II: Building Multisector Partnerships That Work features more than 100 leading voices in public health, housing, transportation, and more. This free to download e-Book supports state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, pediatricians, families and others interested in systems building efforts. 
• Shared Lessons from Pediatrics and Adult Health Care
  Physicians caring for adults and children share many of the same challenges when helping their patients manage chronic conditions. In caring for these groups, more attention has recently been paid to families, social networks, and the social determinants of health. A recent commentary co-authored by the National Center for Complex Health and Social Needs and the Lucile Packard Foundation for Children's Health provides examples of lessons that adult health care can learn from pediatrics and vice versa. This article can support state Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, pediatricians, families, and others caring for children and youth with special health care needs with systems building efforts, providing patient/family-centered care, and enhancing culturally competent care.