This page provides an overview of the National Resource Center for Patient/Family-Centered Medical Home, including formation, goal & network, impact, leadership, and staff. Updated: January 2020 Formation Over the past 15 years, the American Academy of Pediatrics (AAP) has led the National Center for Medical Home Implementation (NCMHI), a cooperative agreement between the AAP and the Maternal and Child Health Bureau of the Health Resources and Services Administration. The goal of the NCMHI was to ensure that all children–especially those with special health care needs–receive care within, and had access to, a medical home. During its operation, the NCMHI succeeded in the following: providing technical assistance to a large number of pediatric medical home stakeholders;developing and expanding relationships and collaborations with national organizations and family leaders and partners; andcreating and promoting an extensive array of tools and resources for the implementation and advancement of pediatric medical home.The most recent cooperative agreement supporting the NCMHI began on July 1, 2013 and concluded on June 30, 2018.Learn more about National Center activities and accomplishments by reading, "Reflections, Outcomes, and Impact: Progress on Pediatric Medical Home Implementation" from 2013-2018 and "A Retrospective Look at Programs and Initiatives Toward a Family-Centered Medical Home for Every Child and Youth: 2008 -2013" and view the National Resource Center for Patient/Family-Centered Medical Home Infographic. The AAP was awarded a 5-year cooperative agreement with MCHB supporting patient/family-centered medical home. This cooperative agreement began July 1, 2018 and will conclude on June 30, 2023. This new cooperative agreement is the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH). Goal and Network As the recipient of the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), the American Academy of Pediatrics (AAP) is one of three organizations funded via this new cooperative agreement from the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA). The goal of the cooperative agreement is to implement innovative programs and activities to address fragmented systems of care for children and youth with special health care needs (CYSHCN). The AAP is joined by Catalyst Center (Boston University) and Got Transition (The National Alliance to Advance Adolescent Health) to form a national network of technical assistance resource centers, Advancing Systems of Services for CYSHCN Network (Network). Together—in collaboration with the MCHB—these organizations will develop shared goals and activities to address three main areas to improve outcomes for CYSHCN and their families—health care financing, transitions, and patient/family-centered medical home.The goal of the network is to engage 90 percent or more of state Maternal and Child Health Title V / CYSHCN programs in technical assistance, training, education, and partnership building activities designed to demonstrate improvement in one or more of the following areas: coordinated, ongoing comprehensive care within a medical home for CYSHCNyouth with special health care needs receive the services necessary to make transitions to adult health careadequate private and/or public insurance to pay for needed services for families of CYSHCNNetwork Year 1 SummaryContact us: firstname.lastname@example.org The goal of the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) is to improve the health and well-being of, and strengthen the system of services for, children and youth with special health care needs (CYSHCN) and their families by providing technical assistance and supporting implementation of the patient/family-centered medical home model. The Healthy Tomorrows Resource Center (HTRC), which provides technical assistance to Healthy Tomorrows Partnership for Children Program (HTPCP) grantees, will also be administered via this new cooperative agreement. The newly funded HTRC will continue to provide technical assistance to HTPCP grantees and collaborate closely with the NRC-PFCMH to support and promote implementation of patient/family-centered medical home through Healthy Tomorrows programs, which a focus on marginalized communities. Impact and Expertise Over 15 years of experience with pediatric medical home implementation.More than 4,200 technical assistance requests answered from all 50 states, the District of Columbia, and US Territories.Multiple educational resources created including webinars, resource guides, monographs, and instructional videos.Collaboration with over 50 national, state, and local organizations.Distribution of medical home evidence, literature, and best practices through publication and presentation at national conferences and in peer-reviewed journals.In addition to the above initiatives, the National Resource Center receives funding to support the Early Hearing Detection and Intervention Program (EHDI). Support of the EHDI program allows the National Resource Center to expand its initiatives related to pediatric medical home implementation. For more information, visit "National Initiatives." Leadership The National Resource Center for Patient/Family-Centered Medical Home is honored to have the following medical home leaders serving on its Advisory Committee.Chairpersons:Deborah Garneau, MA, Rhode Island Department of Health, Office of Special NeedsLuz Adriana Matiz-Zanoni, MD, FAAP, Columbia University Medical Center, Washington Heights Family Health CenterMembers:Marcus C Allen, MPH, Virginia Department of Health, CSHCN Program Fatima Hadi Al-Shimari, University of WashingtonTamara Bakewell, Family to Family Health Information CenterRobert Cicco, MD, RetiredJanet DesGeorges, Hand & VoicesRhonique Shields-Harris, MD, MHA, FAAP, Health Services for Children with Special Needs, Inc.Joan Jeung, MD, MS, FAAP, Asian Health ServiceChristina Kasprzak, MA, Trohanis Technical Assistance Projects Early Childhood Technical Assistance CenterJacqueline Kueser, Children's Hospital AssociationJennifer L Lail, MD, FAAP, Cincinnati Children's Medical CenterLisa Shapiro, MPA, Families USATiffany Scott, Sickle Cell Disease Association of AmericaThomas D Scholz, MD, FAAP, Iowa Department of Health, Child and Community HealthCaroline Stampfel, MPH, Association of Maternal & Child Health ProgramsKate Taft, MPH, Association of Maternal & Child Health ProgramsRenee M Turchi, MD, MPH, FAAP, St Christopher's Hospital for ChildrenJennifer Walton, MD, MPH, FAAP, Nisonger Center UCEDDDana Yarborough, Virginia Commonwealth University, Center for Family InvolvementLiaison:Karen VanLandeghem, MPH, National Academy for State Health PolicyMaternal and Child Health Bureau Liaisons:Sarah Beth McLellan, MPH Staff Christina Boothby, MPAPrincipal Investigator, National Resource Center for Patient/Family-Centered Medical HomeDirector, Children and Youth with Special Health Care Needs Initiatives, American Academy of PediatricsMs Boothby is the Director, Children and Youth with Special Health Care Needs (CYSHCN) Initiatives at the American Academy of Pediatrics (AAP) and the Principal Investigator of the National Resource Center for Patient/Family-Centered Medical Home. She directs several national programs designed to support children and youth with special health care needs with a focus on systems of care improvement and promotion of access to a quality medical home. Ms Boothby guides strategy development and oversees the implementation and evaluation of initiatives related to children with medical complexity, disabilities, and chronic medical conditions.Hope Barrett, MPHSenior Manager, Children and Youth with Special Health Needs InitiativesMs Barrett joined the American Academy of Pediatrics (AAP) in 2015. As Senior Manager, Children and Youth with Special Health Needs Initiatives, she provides oversight and strategic direction for a portfolio of programs focused on special needs populations including medical home, early hearing detection and intervention, epilepsy, and chronic conditions. Previously, she managed the AAP Community Access to Child Health (CATCH) Program and the Healthy Tomorrows Partnership for Children Program (HTPCP). She served as staff liaison to the District CATCH Facilitators (DCF) Executive Committee and worked to evaluate and improve grant awarding programs. Ms Barrett has 15-plus years' experience in planning, developing, implementing, and evaluating a variety of health and wellness programs in an array of settings.Jamie Jones, MPH Manager, Medical Home Initiatives Ms Jones oversees all technical assistance, priority projects and initiatives of the National Resource Center. Ms Jones participates on national, state, and local medical home committees and provides direction to all National Resource Center educational and training initiatives.Bethany (Beth) Mlodoch Program Manager, Medical Home InitiativesMs Mlodoch is the Program Manager, Medical Home Initiatives for the National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH), the Healthy Tomorrows Partnership for Children Program (HTPCP), and the Early Hearing Detection and Intervention (EHDI) at the American Academy of Pediatrics (AAP). In this role, Ms Mlodoch provides technical assistance to pediatricians, other health care professionals, state Title V programs, families, and other stakeholders to ensure all children have a medical home, including children with special needs and children who are deaf/hard of hearing.Melannie Vallejo, BAProgram Coordinator, Medical Home Initiatives Ms Vallejo provides administrative support to all National Resource Center projects and initiatives. Ms Vallejo assists with the provision of technical assistance as well as maintenance of various National Resource Center communication outlets.