Implementation Resources from the National Resource Center for Patient/Family-Centered Medical Home
Additional Implementation Resources
How States Use the National Standards to Improve Health Systems for Children and Youth with Special Health Care Needs
The National Standards for Children and Youth with Special Health Care Needs are used by many state health policy leaders to inform, structure, and improve quality systems of care and ultimately health outcomes for children and youth with special health care needs in their health care systems (CYSHCN). New charts and map from the National Academy for State Health Policy highlight how states have integrated the Standards into their state Medicaid programs and state Title V Maternal and Child Health Services Block Grant Programs.
Prevent Adverse Childhood Experiences (ACEs): Implement Strategies to Prevent ACEs
The Centers for Disease Control and Prevention (CDC) released a new report on adverse childhood experiences (ACEs): Vital Signs: Estimated Proportion of Adult Health Problems Attributable to Adverse Childhood Experiences and Implications for Prevention — 25 States, 2015–2017. Adverse childhood experiences can include violence, abuse, and growing up in a family with mental health or substance use problems. Toxic stress from ACEs can change brain development and affect how the body responds to stress. However, ACEs are preventable and receiving care within a medical home model is an important component of prevention. This report discusses additional practical strategies to prevent and protect against the impact of ACEs.
Standards for Compensation of Family Partners in Research
The Children and Youth with Special Health Care Needs Research Network (CYSHCNet) is a national research network supported by the Maternal and Child Health Bureau. Family partnership is an essential component of patient/family-centered care. The CYSHCNet recently developed a standard of compensation for youth and family partners who participate on a research team. The publication outlines roles, responsibilities, and different types of supports and compensation for family members which can enhance family and professional partnerships.
Prevalence and Trends of Developmental Disabilities among Children in the United States: 2009–2017
A new study from the Centers for Disease Control and Prevention published in Pediatrics examines prevalence of 10 developmental disabilities among children ages 3-17 years. Data demonstrate that nearly 18% of children have a developmental disability, an increase from the last two decades. The most prevalent developmental disabilities were found to be attention-deficit/hyperactivity disorder, learning disability, other developmental delay, and autism spectrum disorder. An accompanying AAP News article and commentary are also available.
Now Available: New Estimates from the Combined 2017-2018 National Survey of Children's Health
The Data Resource Center for Child and Adolescent Health (DRC), under a cooperative agreement with the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau (MCHB), announced the release of the child and family health measures from the combined 2017-2018 National Survey of Children's Health (NSCH). The combined 2017-2018 NSCH is the second multi-year data set since the redesign of the NSCH in 2016 and includes data from 52,129 children ages 0-17 years.
The DRC NSCH Overview page has more information and resources on the NSCH, such as fast facts, guide to topics and questions, changes across years, survey methodology, survey instruments, and more. There are also numerous resources available at HRSA MCHB's webpage on the NSCH, including a 2017-2018 NSCH Fact Sheet. Public use files for the NSCH are also available through the US Census Bureau's NSCH page.
Combined DRC downloadable data sets for 2017-2018 NSCH will be available in winter 2020. Single year 2018 NSCH estimates, downloadable data sets, and codebooks will be available through the DRC in spring 2020. For questions, contact firstname.lastname@example.org. If you are a Title V leader, be sure to note that in your message.
Quality Improvement Resources and Tools
As part of a continuous effort to support care teams in the mission to ensure "every child gets the right care every time," the American Academy of Pediatrics (AAP or Academy) has created a new home for various quality improvement resources and implementation tools. The tools and resources are meant to enable pediatricians and their care teams to implement AAP guidance at the point of care, whether that be in the community, clinic, and/or hospital setting. All of the topic-specific tools and resources, as well as additional information on the Academy's quality improvement efforts are now available.
Updated Guidelines on Attention Deficit-Hyperactivity Disorder
The American Academy of Pediatrics (AAP) updated its guidelines for treating children with Attention Deficit /Hyperactivity Disorder, changing some criteria for diagnosis, updating current medications, and emphasizing the need to rule out other causes of symptoms. "Clinical Practice Guideline for the Diagnosis, Evaluation, and Treatment of Attention Deficit/Hyperactivity Disorder (ADHD) in Children and Adolescents," is based on the most recent research on ADHD, a common disorder that can profoundly affect a child's academic achievement, well-being and social interactions. The guidelines address children from age 4 to 18, with special attention provided for care of preschool-aged children (ages 4-6) and teens. An AAP News article, discussing the new guidelines is also available.
The Healthy Tomorrows Partnership for Children Program (HTPCP): 30 Years of Supporting Innovative, Community-based Interventions to Improve Maternal and Child Health and Access to Care
The Healthy Tomorrows Partnership for Children Program (HTPCP) is a cooperative agreement between the Health Resources and Services Administration's (HRSA's) Maternal and Child Health Bureau and the American Academy of Pediatrics. Since 1989, public health resources at HRSA have joined with pediatric expertise in child health issues at the AAP. Pediatricians have provided care and served as project directors, advisory board members and consultants in HTPCP initiatives. A key focus of all HTPCP grantees is a focus on the medical home model of care. This recent article in AAP News, highlighted successes and lessons learned from HTPCP projects.
New Informational Series from the American Academy of Pediatrics: Safe and Sound: Responding to the Experiences of Children Adopted or in Foster Care
Children and youth who have experienced trauma and adversity need the adults in their lives to recognize and understand how those events may affect their lives—especially their development and behavior. Safe and Sound: Responding to the Experiences of Children Adopted or in Foster Care was developed by the American Academy of Pediatrics with support from the Dave Thomas Foundation for Adoption and Jockey Being Family. This informational series has custom guides for the adults in the lives of these children and youth: A Guide for Parents, which includes a fillable form for the child's pediatrician, outlining his/her past experiences, and a 1-page guide that parents can share with other adults in the child's life; A Guide for Caseworkers; A Guide for Early Education and Child Care Providers; and A Guide for Teachers, Counselors, and Other School Professionals Working With School-Age Children and Youth. The guides can also be used for training and professional development purposes.