Maternal and Child Health (MCH) Title V / Children and Youth with Special Health Care Needs (CYSHCN) programs are the locus of accountability for CYSHCN populations. The majority of MCH Title V / CYSHCN programs coordinate with Medicaid agencies, family organizations, pediatric clinicians, and other public health organizations across the United States to implement initiatives that support implementation and advancement of the pediatric medical home. This e-Newsletter provides tools, resources, and national initiatives to support MCH Title V / CYSHCN programs and other medical home stakeholders enhance collaboration, coordination, and partnerships that serve CYSHCN.

As you will note, the Children's Health Insurance Program (CHIP) is mentioned throughout this e-Newsletter. At the time of publication, bipartisan Congressional action has extended CHIP funding for six years, continuing to provide coverage for nearly 9 million children.

 Implementation Resources (tools & more)

Implementation Resources from the National Center for Medical Home Implementation
  • Medicaid and Children's Health Insurance Program State Profiles
    The National Academy for State Health Policy (NASHP) and the National Center for Medical Home Implementation have collaborated on the development of
    state profiles. States with Medicaid and Children's Health Insurance Program demonstration projects and initiatives, that are proactively advancing the medical home in pediatric populations, are profiled. The profiles focus on information to improve medical home access for children and youth in medically underserved communities and support improved performance on National Performance Measure (NPM) 11, percent of children with and without special health care needs having a medical home. The NPMs are determined by the United States Department of Health and Human Services Maternal and Child Health Bureau. National performance measures are guidelines across population health domains established for the Maternal and Child Health (MCH) Block Grant Program and address priority needs for MCH populations.
  • UpdatedNational Association for State Health Policy (NASHP) State-at-a-Glance Table
    Created by the National Center for Medical Home Implementation in partnership with NASHP, this
    state-at-a-glance table provides an overview of pediatric medical home initiatives occurring through Medicaid and the Children's Health Insurance Program. The table supports Maternal and Child Health Title V / Children and Youth with Special Health Care Needs programs, pediatric clinicians, practices, and American Academy of Pediatrics state chapters and other stakeholders to showcase pediatric medical home initiatives and how work and services are coordinated across multiple systems.

Additional Implementation Resources

  • Considerations for System of Care Leaders for Serving Youth and Young Adults of Transition Age
    Presented by the Substance Abuse and Mental Health Services Administration (SAMHSA), this
    recorded session of the System of Care (SOC) Leadership Learning Community focuses on special considerations for state and local leaders in planning and implementing services and supports for youth and young adults of transition age. This session showcases examples of initiatives that successfully implemented programming supporting transitions of care at the state level. Tips, strategies, tools, and resources are provided.
  • Improving Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN)
    recent brief from the National Conference of State Legislatures provides an overview of state approaches, funding options, national standards, and policy options that state agencies may consider in efforts to improve systems of care for CYSHCN and their families.

 Training, Events, and Conferences

Training, Events, and Conferences

  • National Center for Medical Home Implementation (NCMHI) to Provide On-Site Technical Assistance at the Association of Maternal and Child Health Programs (AMCHP) 2018 Annual Conference
    February 10-13, 2018, Arlington, VA
    2018 AMCHP annual conference provides Maternal and Child Health Title V / Children and Youth with Special Health Care Needs program leaders and staff, pediatricians, family partners and others an opportunity to present ideas, research, and programming for the maternal and child health population, including children and youth with special health care needs. The theme for the annual conference is Staying Focused: The Enduring Commitment of Maternal and Child Health to Families and Outcomes. Participants are from multiple disciplines and include representation from government, physicians, family leaders, research, and advocates. The NCMHI staff will be hosting an exhibition booth and will be available to provide technical assistance to attendees throughout the duration of the conference. They will also be presenting a skills-building session titled Rolling Up Our Sleeves: How to Plan and Implement Quality Improvement Activities Focused on Family Engagement and a poster titled Pediatric Medical Home Implementation – You Can Do It!

 Partners and National Initiatives

Partners and National Initiatives

 Interview with a Healthy Tomorrows Partnership for Children Program Grantee

Interview with a Healthy Tomorrows Partnership for Children Program Grantee

The ReadNPlay for a Bright Future Program (ReadNPlay) at East Tennessee State University (ETSU) is a Healthy Tomorrows Partnership for Children Program grantee in Johnson City, Tennessee. The program focuses on providing family-centered care that includes providing a workbook to be used during infant well child visits, called My Baby Book, distributing a coordinating children's book series as part of Reach Out and Read, and facilitating linkages to community resources and events to provide additional support for raising healthy children.

ReadNPlay incorporates systems perspectives and systems lessons at the clinical level. They utilize a multidisciplinary Community Advisory Board that provides oversight and partnership to the ReadNPlay program. Current membership on the Community Advisory Board includes representation from:

      • Maternal and Child Health Title V program
      • local children's hospital (Niswonger Children's Hospital)
      • representatives from the local department of health
      • representatives from the state American Academy of Pediatrics state chapter
      • health professionals
      • representatives from regional community organizations
      • family members/caregivers

To develop the multidisciplinary Program Advisory Board, the ReadNPlay program considered the stakeholders in the community and in the state currently serving the target population. Once key groups and entities were identified, partnerships were built by aligning common goals and establishing projects and programs for collaboration. A document outlining board function and participant responsibilities was provided to potential new board members before joining.

Partnership with the multidisciplinary board allows for systems level collaboration. For example, the ETSU Pediatrics and the local children's hospital, Niswonger Children's, have been collaborating with the regional health office home visiting program to improve coordination of care for children with complex health and social issues. These organizations have been developing a plan to integrate staff from the regional home visiting program into the ETSU Pediatrics Clinic and subspecialty clinics at the hospital. Additionally, the board works together to discuss what resources and programming are needed at both the clinical and community levels. Membership on the board allows for stakeholders to co-author grant applications and develop new programming.

Sustainability of the program is supported through an established partnership with Niswonger Children's Hospital, which hosts a Children's Resource Center (CRC). The CRC engages in advocacy efforts and focuses on children's health at a population level. Through funding from the Healthy Tomorrows Partnership for Children Program and the CRC, a full-time health promotion coordinator for ReadNPlay was hired in the CRC. The ReadNPlay program anticipates continued partnership and growth of the program by leveraging their strong partnership with the children's hospital and multidisciplinary team work.  

For more information on the ReadNPlay program, visit the Healthy Tomorrows Partnership for Children Web site.